I have DLE...FML.

Basically your situation totally sucks. I mean, there's no way around the suckitude of it. Your hair is falling out and you have all these lame lesions. Super uncool. There isn't any good reason for you to have this disease. You totally got the short end of the good genetics straw.

However, I think you can OWN it. Just taking a good look at your head, I can already tell you that your headshape is superb. Why not just ditch the do and go for a more summer friendly complete baldness? Shave it all off!

And as for your lesions, I don't know if they are painful or how affective treatment can be on them. If you can't do anything about them, just make it a running joke. I suggest coming up with awesome stories about how you got them if you catch someone staring.

"Oh these? I got these from fighting off a bear."

"I see you noticed my breakouts. I'm allergic to staring."

I had a friend with a huge birthmark on her face and whenever she saw someone staring, she would say she was half werewolf.

As for the friends situation, why don't you try joining some campus groups? Explore your interests and you are bound to meet people who aren't assholes.

What I'm trying to say is you have the choice whether you let this disease keep you cooped up or if you punch DFE in the face. I vote for the punching.

 

Knowing the medical advancements today, theres got to be SOME sort of treatment for the breakouts. I, to a certain extent, understand what youre going through. I have a big acne problem. It used to get me down ALL the time. Heres these fucking bubbles on my face. GAH! Then, I just realized that looks arent the key to happiness and finding love. Sure, theres assholes who will say shit but fuck them. They have no relevance. Shaving the head might be a good idea too but do what you please. I just looked at your avatar and I gotta say, you're pretty cute:icon_redf

 

Well, i dont know what to say really. I know it sucks, i am so stranger to having a truck-load of horrible medical crap going on with me, just none of mine show on the outside...

...but dont fear on the dating thing. Hair is actually the BEST thing to have a problem with. Clip it all off, stick on a wig By wig i mean like a hand-crafted real hair fitted wig that does not look fake. They can be pricey for a good one though, but worth it im sure. Britney sported the wig and everyone still loved her! Well, ok, i still loved her...

 

Mm, yes, i do. But look at The hunchback of Notradame! He was SO much more nasty and he still gets the girl! (or does he die? crap...i forget...)

Not EVERYONE is so obsessed with how perfect you look, and trust me on this one. I have fallen for maaaany a guy who was not the hollwood type of man. When someone is true, honest, and pure of heart that gives off a glow that can make him or her more beautiful than anyone else. Whats inside, and i know this will sound fake cheesy cliche and all the rest, is really worth more than the outside. The outside, in my opinion and the opinion of others, is really just a cheery on top. Its something that can be worked on too, so it does not take my priority. Makeup, surgery, wigs, working out, diet, blah blah blah the world is full of ways to make your outside match the inside. However, there is really nothing you can do about masking what your inside is like. And you REALLY seem like a great person, so in my eyes you are set for life.

 

BRITNEY!!!
:-( , i feel for u *hugz*
u'll b ok
xo.

 

Sorry to hear about this.

Are there any treatments for it? Will the hair grow back?

I know what you mean about living in Orange County though, the people here are very shallow.

If it's any consolation, you look fine in your avatar

Hope you feel better, and don't let this ruin your spring break, put a hat on and have fun.

 

I'm on the border of orange county. A few of my friends have been to tiger heat, but I've never gone. I've only been to club savilla (avenue).

 

Haha, googling gay clubs. The only other gay club I know of around here is club oasis, which yet again I havn't been, but a few of my friends have

Avenue was fun, a lot of scene people but it's good times. I have fun at any club though really

Sadly, I can't PM you, you have to become a full member before you have access to PM. I think you have to apply for it though.

 

I definitely agree with Numfarh about finding ways to own the condition. I have a serious balance problem and walk with a cane, which means I've had approximately 485780643 people ask why in the two and a half years I've been using it. If I just say "I have a balance problem", people will tend to get into "why" and that sort of thing, and the conversation ends up all about my health issues. When I answer "it's actually where I conceal my shotgun", at least I can make the person laugh, and think "this person has a weird sense of humour", which is better than "this person has an illness".

 

(*hug*)

I know it's hard, but:

Accept the things you can not change.
Find the courage to change the things you can change.
Develop the ability to know which is which.

You can't change the fact that you have Lupus - as unfair and crappy as that might be. So accept it. You'll feel better for doing it.

What can you change? Your haircut. Wearing a hat. Using the medication prescribed. Getting out and doing things ANYWAYS!

I know you'd like to be better looking in the eyes of others. But we all would. I look at myself in the mirror and think "Gosh - I really am pretty much bald on the top of my head. That sucks." But I don't let it get me down. I think about what I might want to do about it, and the reality is I am not THAT upset about it to do anything. My bf still says I look good, and I choose to believe him. I wear hats in the summer so I don't burn my scalp. And when the time comes, I guess I'll go with the 'buzzed' look.

It's up to you to make the best of what you've got. It sounds like things - overall - aren't too bad. You live in sunny California, you're bright enough and fortunate enough to attend university. You're gay (and we all know how that 'kicks ass', right? :icon_wink). But even when things appear OK, it's OK to be down about stuff too. You're entitled. Just don't let it get the best of you.

PM me (as a moderator) if you want to chat privately about this stuff...

 

I'm sorry to hear about that-

I had some ideas while reading this thread:

-First of all, don't let it get you down. That would be letting the disease win,
and we can't have that! Try to remain happy and self-confident (might take time).
Learn to love yourself the way you are and don't worry about what other people
may think.

-Second of all, on a more superficial level, is the hair loss only in certain areas?
If so, you could grow your hair out, that might hide the places where the is hair loss.
I was thinking how some people with giant birthmarks put makeup on, but maybe
that would interfere with medication?

Hope I helped
(*hug*)

 

Aww sorry to hear.. Yeah I seen alot of guys DLE all over their head. Have you tried eating anti-inflammatory foods?? like Omega 3?

found this site hope it helps :]

http://nutrition.about.com/od/dietsformedicaldisorders/a/antiinflamfood_2.htm