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| Physical & Sexual Health A forum for peer support and informal advice on matters related to physical and sexual health. This forum is not to be used as a place to obtain a diagnosis on an issue or as a replacement for professional consultations with approved medical practitioners. |
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| Guest | Soooo I was walking down the street with my girlfriend and pointed out a cute little bunny jumping around in the grass. She agreed it was a handsome bunny and pointed out another farther down the road. Of course, I started laughing and teased her about it considering it was not a rabbit at all, but a freaking BIRD. After about 3 comments about her inability to tell the two apart, she started to look miserable. Despite my usual inability to pick up emotions, I did notice this and started apologizing. "You really need to know that... I'm going to go blind!" I always knew my girlfriend had terrible eyesight, but I wasn't prepared to hear that. She then went on to say that her mother has this thing where her eyes are RIPPING IN FUCKING HALF in the back, and that she probably has the same thing. I just about fainted when this lovely piece of knowledge hit me. I assume that I don't need to mention that there is no cure! I don't think she called it anything, so I can't really tell you what it is, but DEAR GOD. I don't want my girlfriend going through what sounds like unimaginable pain. I don't want her to go blind and miss out on this beautiful world we live on. I want her to get better. Even though this isn't going to happen for years, I'm worried as hell. Has anyone else heard of this stupid thing? |
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| | #2 |
| EC Addict Full Member ![]() Gender: Female Location: Scotland Age: 21 Posts: 1,346 Join Date: Jan 2012 | i havent heard of what your girlfriend has, but my borther is blind in one eye and it happened gradually. i cant mind what its called, but i think its something to do with a nerve in his eye that just stopped working or something..... this probs didnt help, but youre not alone. ![]()
__________________ What comes before part b? PART-AYYYYY ![]() |
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| | #3 |
| Girl Fox Full Member ![]() Gender: Vixen Orientation: Love all the people! Out Status: Everyone knows I'm trans :) Location: Bowling Green, OH Age: 19 Posts: 1,032 Join Date: Sep 2011 | It does sound horrible, I can't imagine going blind; but you'll be there for her and that's what matters. It could be retinal atrophy. That's genetic and progresses to full blindness, there isn't a cure. I'm sorry you have to go through that. ![]() ![]() ![]() ![]() ![]() ![]()
__________________ I have only abandoned my body, I still live here. |
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| | #4 |
| i may be new , but i know ALOT ;D Regular Member ![]() Gender: Female Orientation: Bisexual Out Status: A few people Location: illinois Posts: 45 Join Date: Jun 2012 | You will just have to support her through this. That's all that you can do. |
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| | #5 |
| EC Addict Full Member ![]() Gender: genderfluid Orientation: BOOBIES!! Out Status: Out to everyone Location: USA Age: 22 Posts: 559 Join Date: Nov 2011 | I have something similar. Stopped going to doctor after doctor after they couldnt figure it out. I know I will eventually be blind.
__________________ History, despite its wrenching pain, cannot be unlived, but if faced with courage, need not be lived again. Maya Angelou |
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| | #6 |
| Guest | I'll always be there for her, even if she goes blind, deaf and mute all at once, but I don't want her to ever go through that. And it sounds so painful! The poor baby... |
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| | #7 |
| A very proud dad Full Member ![]() Gender: Transgender - FtM Orientation: Bisexual Out Status: Out to everyone except for at work Location: Sherbrooke, QC Canada Age: 27 Posts: 629 Join Date: Mar 2012 | You know, blind people usually have their other senses compensate..? Your girlfriend might feel the world so much more intensely as she looses her sight. She's going to experience a way of life that isn't that painful, in a way that most people don't. Lots of blind people are very happy with their lives, are in love... living normal lives, seeing with their hands, their ears, their noses. Life changes everybody in different ways. Life's gonna change you as well and it may not be for the worse. Be there for her, and who knows, maybe she will be the one helping YOU through this. |
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| | #8 |
| A brave pony Regular Member ![]() Gender: Probably MtF... Possibly anything. Orientation: Bi/pansexual, either fits. Out Status: To some family&friends as bi. To no one as trans*. Location: Klein sexuality bottle Posts: 335 Join Date: Dec 2011 | Yes, I know very well how this feels like... Unlike your girlfriend, there are things doctors can do for me to prevent total blindness, so I have it much easier, but it's still... Very difficult. Especially considering how many idiots there are who don't believe these kinds of conditions exist, or ask "can't they cure you with a laser or something nowadays?" What often helped me was remembering that quite a few very famous people had very serious eyesight problems and eventually went blind, but It didn't hold them back (as banal as it sounds.) Yes, I doubt I'm another Leonard Euler or Eric Hoffer, but it's still very comforting to know that even if the worst happens, it's not the end.
__________________ Someday every day would be a Pride day... Last edited by WeirdnessMagnet; 22nd Jun 2012 at 03:10 PM.. |
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| | #9 |
| Member Regular Member ![]() Gender: Female Orientation: Lesbian Out Status: Out to some friends + a few family members Location: Australia Age: 17 Posts: 60 Join Date: Oct 2011 | my best friend only has 10% vision and is legally blind, it will get worse over time but she is the most lovely, happy and kind person i have ever met. She may not be able to see much of the world but like others have said her other senses kick in and she is still able to enjoy things. another friend of mine also in a few years may go completely blind, however, she is living her dream and singing and recording. i just want you to know that your girlfriend still has a lot she can do, and having support like you she will be able to be happy and still able to enjoy her life. i know its hard though |
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| | #10 |
| The Asian With A Wig Full Member ![]() Gender: Questioning Orientation: Gay, maybe bi Out Status: Not out about my gender, out about my sexuality Location: Fargo North Dakota, USA, Earth, Milky Way Galaxy Posts: 555 Join Date: Dec 2011 | Although this is a little off topic, I heard about this invention that can take pictures of rooms and allow blind people to feel it. |
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| | #11 | |
| EC Addict Full Member ![]() Gender: Female Orientation: like girls; usually attracted to personality xD Out Status: Its complicated.Came out, then edged back to my EC Location: UK Age: 19 Posts: 492 Join Date: Oct 2011 | Quote:
Just remember you have each other and you'll always face challenges in life, some pretty straightforward and others life changing, but if you get through it together, it'll only make you stronger. Hope things work out well ![]()
__________________ Listen to your head.. or follow your heart. You'll abandon your world here, but will be creating your identity elsewhere. ~the start of something new... <3 | |
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| | #12 |
| EC Addict Full Member ![]() Gender: Female Orientation: 95% Lesbian Out Status: One foot out of the closet (Out to 10 people) Location: New York State, near Rochester Age: 20 Posts: 335 Join Date: Jan 2011 | Wow that's really tough, but you always have to look at the bright side of life! Does your girlfriend like dogs? If yes then she will be able to get an awesome seeing eyed dog eventually. Going blind is tough, but blind people definately do not live lives 'less than' other people. Sure it will be a BIG adjustment, but all will be well, and as long as she has people there to support her then it should all work out okay.
__________________ "Say what you mean and mean what you say because those who mind don't matter and those who matter don't mind." |
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| | #13 |
| EC Addict Full Member Gender: Male Orientation: Gay Out Status: To one person only Location: Los Angeles, CA Posts: 427 Join Date: Jun 2011 | Sorry to hear that. Just being supportive and be there for her is really all you can do. |
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| | #14 |
| Bitterly Optimistic Full Member ![]() Gender: Liking guys is easier when you ARE one ^^ Orientation: Kinsey 5.7125 Out Status: Throwin rainbows in everyone's incredulous faces Location: Georiga Age: 16 Posts: 540 Join Date: Jan 2012 | I wish you two the best since I can't give any information on the matter. Stay strong for her and keep her at ease.
__________________ "I thought you couldn't afford to lose? Give up on yourself...And you give up on the world." -Yoshiya "Joshua" Kiryu (The World Ends With You) |
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| | #15 |
| Well Known Full Member ![]() Gender: Woman! Orientation: Bisexual Out Status: My closest friends Location: Utah Posts: 106 Join Date: Jun 2012 | I want to share a story of my sister who got better from a weird problem with her eyes. I hope you see this as an inspiration. I really feel for you, I knew the pain I went through when my sister got sick. My sister went legally blind when she was in high school. She has always been the person to get random weird issues. (thats another story all together) Her issue was floating "clouds"... she could only see things from the side. they moved around and prevented her from seeing things directly in front of her, like there was darkness where ever she looked. There were doctors that flew in from Germany, Her case was one of the worst they had seen and but the fact that the "cloud" moved around they were really interesting to them. She remembers 10 doctors all from different locations talking about different treatments. her eyes were dialated (not sure how you spell that) it seamed for weeks as they ran tests. After about a year, she got used to her vision grew to live her life as she was. Then one day she was drinking milk (out of the carton, something our family always hated when she did it... but she did it when no one was looking. We busted her as she dropped the milk when her vision returned. All over the carpet, and since I was the little sister guess who cleaned it up ^.-) She said it looked like something was being flushed down the toilet but it was the clouds in her eyes. Beautiful day for our family, but after so long we accepted what her vision was. hopped for the best but knew she would be okay and happy even if she had a disability. I hope the best for you and your girlfriend. <3
__________________ Love is not a destination, it’s a journey. |
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| | #16 |
| Dreamer Regular Member ![]() Gender: Female Orientation: Bisexual for now... Out Status: Iv'e told one friend. Location: On a cloud Age: 13 Posts: 90 Join Date: Jul 2012 | I am so so sorry. I really do hope a miracle happens. I hope she gets to see the beautiful things is this world before/IF anything happens to her vision. My aunt is blind, but can see the outline of people, and light. Good luck! I hope nothing happens to her!
__________________ Sometimes, Silence is a really good answer! |
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| | #17 |
| Guest | Macular degeneration? Maybe that's it, you could read up on it.... the best thing I can say to you at this point is, you need to be as supportive as you can, it sounds like she needs to not have people in her life who are going to bail on her. You can still be happy, even if the worst does happen, I'm convinced of that.... keep us posted, k? Last edited by Pippa; 9th Jul 2012 at 06:44 AM.. |
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| | #18 | |
| ~~~ Full Member ![]() Gender: I have a girl's mind Orientation: I like boys <3 Out Status: One person Location: Pittsburg, PA Age: 15 Posts: 425 Join Date: May 2011 | Quote:
Can't she have eye surgery. There. has. to. be. something! ![]() You may only be able to support her through this. I feel really really bad for you two. ~Keelin
__________________ "Your sexuality is only a small part of who you are... Don't let it own you." ~Ukeye | |
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